The child who has been prenatally exposed to alcohol has the right to honest, diagnostic information that has not been corrupted by ego, social stigma or ignorance by our health professionals. Individuals with FASD and their families have the right to specifically targeted integrated support services implemented by professionals who have a sound understanding of the complex needs of children/adolescents and adults who have this (lifelong) disability.

The National Organisation for Fetal Alcohol Syndrome and Related Disorders Inc.

The National Organisation for Fetal Alcohol Syndrome and Related Disorders Inc. (NOFASARD) was established and incorporated in Adelaide in 1998. It is Australia's peak body representing parents, carers and others interested in or affected by Fetal Alcohol Spectrum Disorder (FASD). NOFASARD currently receives no operational funding and is staffed totally by volunteers.

The Aims and Objectives of NOFASARD are:

• To promote and resource good practice in the management of Fetal Alcohol Syndrome and related disorders resulting from prenatal alcohol exposure.
• Provide information, advocacy, education and support that will assist carers and those working with and affected by Foetal Alcohol Syndrome and related disorders.
• Work towards the prevention of Foetal alcohol syndrome and related disorders.

NOFASARD members lobby State and Federal Agencies, politicians and professional associations about:

• The lack of appropriate education about the effects of alcohol use during pregnancy
• The lack of acknowledgment of this disability by health authorities in Australia
• The lack of appropriate management strategies and support for people with FASD.

Through education and advocacy, NOFASARD members aim to improve the lives of children/adults with FASD. Representatives from the organization present at seminars and workshops for both government and nongovernment agencies throughout Australia